Description
The FAIR Guiding Principles are sometimes interpreted as "as open as possible, as closed as necessary", but more and more research data is "sensitive" and requires special treatment. The definition of "sensitive" is expanding, starting from traditional areas of personal health information and social science data, to data about commercial enterprises, endangered species, indigenous culture and knowledge and more. This session will start with an overview of legal and regulatory requirements for sensitive data (including definitions and changing landscape), and then explore the landscape of technologies and infrastructures designed to work with sensitive research data.
Presentations from/on:
- Policy perspective: EUSD, Data Governance Act, forthcoming Data Act
and Digital Europe initiatives - HealthyCloud
- Fair4Health
- FairPlus & Innovative Medicines Initiative (IMI) (present "FAIR Cookbook"?)
- GA4GH
- RDA Sensitive Data Interest Group
- CESSDA
- GBIF (endangered species)
- SeaDataNet (?) -- sensitive ocean data (e.g. ocean floor topography
around harbours, archipelagoes)
Workshop will conclude with open discussion of approaches, architectures and solutions that could provide a common foundation for the secure processing of sensitive data in the EU.
